Wednesday, May 12, 2010

print some new skin............

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This is exceedingly cool................




Seen at In the Labyrinth.

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5 comments:

Lorraina said...

Awesome flower pics again, as usual you and your camera see the most interesting things.
I love the one of the dandelion; he has such character and attitude!

May 12, 2010 at 6:36:00 PM EDT
Lorraina said...

oops sorry i commented on flowers on the wrong post.

I watched the printer vids and both were amazing and very interesting to see and learn of such technology!
Maybe i'll be able to get a new liver this way.

I was disappointed however to hear the Dr. in the video say if you have damaged lungs to quit smoking and if your liver is damaged then quit drinking......huh?!!?

A Dr. who is ignorant of the facts that not all liver or lung diseases are caused by drinking or smoking shouldn't make videos on the subject. His ignorance hurts me and many others.

I have an auto -immune liver disease but i've never been a boozer in my life.
A friend recently had surgery for lung cancer and she has never smoked in her life.

I'm just saying its really too bad that guys ignorance makes those who have these diseases flinch knowing that his words will likely be remembered and will perpetuate those myths.

Not your fault of course; i'm just saying because i've felt the stigma of the look that people have when they hear i have a liver disease. They think i'm a closet drinker and that couldn't be further from the truth.

Sorry for my long winded personal triade here. I'd tell that guy off and educate him if i could.

If you'd like to know more about auto-immune liver disease please check here http://pbcers.org

May 12, 2010 at 7:22:00 PM EDT
I need orange said...

Thanks for the kind words! Very nice to hear.

I did not go back and listen to him, but what I heard when I listened the first time was IF a person has damaged her/his organs by bad behavior, should s/he still get replacements?

I may be wrong, and I'm sure you have heard, way too many times, that you must be at fault for your condition.

It was my impression that he meant that people like you should get new organs (donated or printed!) before people who have wrecked perfectly good organs by drinking and/or smoking......

Maybe I only heard that because it is what *I* believe..........

May 13, 2010 at 6:34:00 AM EDT
Lorraina said...

Thanks so much. I'm glad you wern't mad or upset at my outburst; thanks for your kindness, understanding and compassion.

I'm not sure if thats what the Dr. was saying either. I guess i'm sort of touchy on the subject of my disease because my family totally ignores it even though anyone can clearly see how badly its affected me since i was diagnosed in '98

I get little sympathy and in a way that makes me feel guilty; like as if i did something that caused me to get PBC.

My sister and i even argued when she told me about a distant cousin who had contracted hepatitis from using a dirty needle to inject heroin.

She claimed that he was on the transplant list for a new liver and i said no, i don't think so.
Livers are so rare; they wouldn't waste one on a druggie.

She insisted that yes, he was near the top of the list.
I said thats BS.

Eventually she told me this cousin went to Mexico for a miracle cure, came home claiming he was cured, took himself off the transplant list and then died.

She still tells this story as if it were true. It annoys and hurts me so much because other than this we are extremely close. But i can't help but to take it as that she still chooses to not believe me or to learn anything about liver disease and that he was nowhere near the top of the transplant list.

But maybe like you i just want to believe what i think should be right. Or that she would acknowlege my liver disease.

May 13, 2010 at 6:22:00 PM EDT
I need orange said...

No problem.

Sometimes I think people like to "blame" people who are sick, because they think that if *they* don't smoke, or drink, or whatever, they are magically protected from having bad things happened.

If you are sick, and completely innocent of smoking, drinking, whatever "blame-worthy" behavior, that means that *they* are vulnerable to getting sick, too, and that is scary......

Which is no excuse, of course, for blaming you.

I surely hope no druggies are on the list for transplants!

That is -- I bet they are on the list, but I believe they should be at the very very very bottom.

They had a healthy liver (or whatever) and they made it sick through behavior they CHOSE.

So different from someone like you.....

!!!!!!!!!!!!!!!!!!!!!!!!!!!!

How frustrating when your own family can't be bothered to try to learn and understand your condition.

!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Sometimes families are a huge source of comfort and support, and ... sometimes ... alas ... not.

May 14, 2010 at 11:05:00 AM EDT

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